Table 3 Centralized databases that disease registry cases are commonly linked to
Number | Name | Description | Purpose of Linkage |
|---|---|---|---|
1 | Admission records (admission table in CCR database) | One or more admission records are consolidated to generate a single tumor level record | Record consolidation |
2 | Medicaid | Medicaid claims data, generally for a rolling 5Â year period | Casefinding; patient attribute confirm/update |
3 | Hospital discharge | Discharge sheets submitted by hospitals to state health authorities | Casefinding |
4 | Rapid case ascertainment | Databases of smaller subsets of patients who meet criteria for enrolling in research studies | Casefinding; patient attribute confirm/update |
5 | Dept. of Motor Vehicles Driver’s License Data | US state database storing the demographic and other attributes of drivers | Patient attribute confirm/update |
6 | Board of Elections’ Voter Registration Data (BOE-VR) | US state or county database storing demographic and other attributes of voters | Patient attribute confirm/update |
7 | National Death Index | List of deceased persons, aggregated across US states | Patient attribute confirm/update |
8 | State Death Registry | List of deceased persons, aggregated across counties in a state | Casefinding; patient attribute/update |
9 | Social Security Death Index(SSDI) | List of deceased persons, aggregated across counties in a state, with US Social Security Numbers | Casefinding; patient attribute confirm/update |
10 | Government Postal Address Database | Used to clean addresses, or diagnose address problems | Patient attribute confirm/update |
11 | GIS Street Centerlines | Digital linework corresponding to center of US streets, with address and postal code attributes. Used for navigation and emergency response | Geocoding |
12 | GIS parcels | Digital parcel polygons corresponding to property ownership, with some site address attributes. Used for tax assessment | Geocoding |
13 | GIS address points | Digital points, generally corresponding to a primary residence within a parcel. Used for navigation and emergency response | Geocoding |
14 | Census enumeration area polygons | Digital polygons, approximating delineation of census enumeration areas (EA). Used for spatial overlay to assign EA | Assignment of EA to patient record |
15 | Census enumeration area table | Table that can be joined to using geocoding reference identifiers, to assign enumeration area | Assignment of EA to patient record |